Kristie's Blog
Thursday Quinn Update
January 15, 2009
Comments (0)
here is a lovely letter from Candace that gives us the latest updates of how he is doing:
Some great news, and more miracles happening for our Quinn. He was scheduled this morning for a shunt to be put in his brain to drain the spinal fluid that was building up and not being reaborbed into the ventricles in the brain. That shunt was to drain the fluids into his abdomen, and it was going to be somewhat of a permanent thing. But, with God's miracle, Quinn's brain is absorbing the fluids very well, surgery was canceled and the drain that was placed in his brain just after surgery two weeks ago was removed. A huge step.
Quinn will most likely move out of intensive care tomorrow. I can't believe it, and so relieved he is making this huge step. He will have a CT scan on his brain tonight at 6pm to confirm that the spinal fluid is being absorbed correctly into his brain and not building up. So, after we hear the results from that, it will be confirmed that Quinn can move down to floor 3, which is the recovery floor.
Quinn is getting a "healing touch" massage right now from hospital. The hospital has amazing resources like that. Quinn seems to really be enjoying this and is at peace.
So things are moving in the right direction. He is still so far from "baseline", as he swallow function is still not strong enough, he still can not hold up his head, or sit up on his own. His left side is still not moving. But he did give me a little smile with BOTH sides of his mouth today with his favorite peekaboo. That was wonderful.
More good news is that the pediasure he is receiving via the feeding tube through his nose is at the maximum level of feed. That means he is absorbing all the food that is put into his stomach. 45cc an hour. Wonderful news as he needs the nutrition and fat for his brain development.
I'm doing pretty well these days. I have been spending hours on end with him, and it's such a sweet time with him. I get to kiss him as much as I want without him running away.....:) I now lay down in bed with him, and just hold him, and sing to him and stroke his little head. The power of touch is amazing.
Wow, what a wonderful and beautiful and mysterious life we all live......one never knows what is around the corner. Live each day to the fullest.......lots of love....and Thanks be to God for all the gifts He has given.
Some great news, and more miracles happening for our Quinn. He was scheduled this morning for a shunt to be put in his brain to drain the spinal fluid that was building up and not being reaborbed into the ventricles in the brain. That shunt was to drain the fluids into his abdomen, and it was going to be somewhat of a permanent thing. But, with God's miracle, Quinn's brain is absorbing the fluids very well, surgery was canceled and the drain that was placed in his brain just after surgery two weeks ago was removed. A huge step.
Quinn will most likely move out of intensive care tomorrow. I can't believe it, and so relieved he is making this huge step. He will have a CT scan on his brain tonight at 6pm to confirm that the spinal fluid is being absorbed correctly into his brain and not building up. So, after we hear the results from that, it will be confirmed that Quinn can move down to floor 3, which is the recovery floor.
Quinn is getting a "healing touch" massage right now from hospital. The hospital has amazing resources like that. Quinn seems to really be enjoying this and is at peace.
So things are moving in the right direction. He is still so far from "baseline", as he swallow function is still not strong enough, he still can not hold up his head, or sit up on his own. His left side is still not moving. But he did give me a little smile with BOTH sides of his mouth today with his favorite peekaboo. That was wonderful.
More good news is that the pediasure he is receiving via the feeding tube through his nose is at the maximum level of feed. That means he is absorbing all the food that is put into his stomach. 45cc an hour. Wonderful news as he needs the nutrition and fat for his brain development.
I'm doing pretty well these days. I have been spending hours on end with him, and it's such a sweet time with him. I get to kiss him as much as I want without him running away.....:) I now lay down in bed with him, and just hold him, and sing to him and stroke his little head. The power of touch is amazing.
Wow, what a wonderful and beautiful and mysterious life we all live......one never knows what is around the corner. Live each day to the fullest.......lots of love....and Thanks be to God for all the gifts He has given.
Leave a comment