Kristie's Blog
quinn update 1-28-09
January 28, 2009
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Dear friends,
Quinn progress continues to be steady. Here is the update in Candace's words. I cut a portion from an email she sent:
All is going well here. Quinn is improving a bit every day. He seems to be more alert, and is moving his legs quite a bit.
He did "fail" his swallow study, though. The x-ray video machine showed the formula that was given to Quinn trickle down his throat, but then he aspirated, or breathed it into his lungs. His swallow reflex did not work.
So, he is having three Gastro-Intestinal tests this week to see exactly which type of GI tube he will get placed in his stomach wall so he can receive his feeds that way instead of by the tube through his nose. The surgery will take place Thursday. After that, the doctors will watch the tube for a few days, then he will be free to go!!!
The doctors will repeat the swallow study 30 days after this last one to see if there has been any improvement.
Today Patrick and I are having a meeting with all of Quinn's doctors to decide on what sort of care is best for him at this time. Either an in-patient rehabilitation center for a few weeks then come home, or straight home to at-home-care with out-patient PT and OT.
I know Patrick and I are both leaning towards the at-home care straight away. We can not wait for our boy to come home. I know he will thrive at home with the sights and sounds of Casey and Maxine running around the house.
Let's definitely keep praying for his swallowing abilities, motor skills and for the continual healing of his body.
At the end of her email, she noted that they will be so busy with tests, meetings, procedures, that they won't be able to have visitors this week. Thanks for your love, time and understanding! This community has been so amazing through this whole process...and I know I can speak for so many of you when I say, I know we will continue to be here...walking this road with the Kelly's.
Sincerely,
Kristie
Quinn progress continues to be steady. Here is the update in Candace's words. I cut a portion from an email she sent:
All is going well here. Quinn is improving a bit every day. He seems to be more alert, and is moving his legs quite a bit.
He did "fail" his swallow study, though. The x-ray video machine showed the formula that was given to Quinn trickle down his throat, but then he aspirated, or breathed it into his lungs. His swallow reflex did not work.
So, he is having three Gastro-Intestinal tests this week to see exactly which type of GI tube he will get placed in his stomach wall so he can receive his feeds that way instead of by the tube through his nose. The surgery will take place Thursday. After that, the doctors will watch the tube for a few days, then he will be free to go!!!
The doctors will repeat the swallow study 30 days after this last one to see if there has been any improvement.
Today Patrick and I are having a meeting with all of Quinn's doctors to decide on what sort of care is best for him at this time. Either an in-patient rehabilitation center for a few weeks then come home, or straight home to at-home-care with out-patient PT and OT.
I know Patrick and I are both leaning towards the at-home care straight away. We can not wait for our boy to come home. I know he will thrive at home with the sights and sounds of Casey and Maxine running around the house.
Let's definitely keep praying for his swallowing abilities, motor skills and for the continual healing of his body.
At the end of her email, she noted that they will be so busy with tests, meetings, procedures, that they won't be able to have visitors this week. Thanks for your love, time and understanding! This community has been so amazing through this whole process...and I know I can speak for so many of you when I say, I know we will continue to be here...walking this road with the Kelly's.
Sincerely,
Kristie
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